1. Systematically collect data on common and rare conditions
2. Examine disease and management outcomes
3. Conduct hypothesis driven multi-center research studies
4. Conduct pharmacokinetic and pharmacogenomic studies
5. Enable the collection and banking of DNA and other biologic samples

1. List your already established protocol in order to find collaborators or request patient referral
2. Find an investigator who has an established protocol and is seeking collaborators
3. Elicit the opinion of LWPES members as to whether the project/protocol you envision will find interest (and thus collaborators)
4. Participate in SNoPE-initiated studies.

Adverse Drug Reactions

As a result of the SNoPE discussions and the elucidation of the complications associated with the use of PTU, the ability for members to report potential adverse effects can now be made through a direct link on the LWPES website to the FDA’s MedWatch Home Page. http://www.fda.gov/medwatch/